You’ve got the toughest job in the world – and that’s before allowing for the extra weight of caring for someone with a bleeding disorder. Here are a few of the tips volunteered by our members who are single parents themselves.
- Take each day as it comes. If your little person can get through it, so can you.
- Let them be themselves, but most importantly, make sure you get time for yourself.
- Remember that having a bleeding disorder is only a part of life, not all of it.
- Be demanding. Ask for help and support wherever you can get it, and fight for your children’s needs and interests.
- Don’t ever feel alone or isolated. Join The Haemophilia Society’s forums and groups so you can talk to others going through the same things.
- Nobody chooses to be a single parent – we get lost, or betrayed, or unhappy, or bereaved. Never feel bad for stopping everything for five minutes and getting your head straight.
- Try not to doubt yourself. There’s an old saying that it takes a community to raise a child, and no-one feels that more keenly than someone raising children with little or no external support network. You are doing the best you can.
- Learn to prioritise important stuff, even if it makes you unpopular. It’s no good putting your last tenner on your child’s phone credit, if it may be needed for an emergency hospital stay.
- Community nurse support really helped me with home treatment after port-a-cath removal and before self-infusion.
LOVE. And lots of it! Love, support, compassion and a calm mind are the magic ingredients that get us through anything.