Laurence Woollard is passionate about improving patient experience and effecting real change in healthcare services for people who live with rare disorders. With his first-hand experience of living with severe haemophilia A, Laurence works hard to raise awareness and to champion the rights of patients with bleeding disorders.
For more than two years Laurence has been extensively involved in patient advocacy and engagement within the rare disease community, both at local and international levels. He has served as the patient representative of the Royal London Hospital Haematology Centre within the North London Adult Haemophilia Network (NLAHN). He has represented the UK’s Haemophilia Society and the European Haemophilia Consortium (EHC) as a youth leader at international events and workshops. As a youth member of the European Patients’ Forum (EPF) he worked as part of the secretariat in Brussels supporting the development and implementation of key EU-wide initiatives for young patients across a range of chronic disease areas. Laurence sees his role as translating the voice of the patient into actions that improve service quality and firstname.lastname@example.org