Helen has volunteered for The Haemophilia Society both locally in Yorkshire and nationally over the last 15 years and has run online support groups for both women with bleeding disorders and people with von Willebrands since the 90’s. She also volunteers locally in the NHS in a patient participation capacity and had worked with a local disability rights charity. She is a passionate, patient advocate and worked in the NHS for 12 years. She is also an accredited tutor for the Expert Patients Programme, a self-management programme for people with long-term health conditions. Helen has von Willebrands type 3 (severe) and has cleared Hepatitis C.