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Supporting you and providing opportunities to meet community

As the UK’s only independent charity for everyone affected by a bleeding disorder, we are a growing community of individuals and families, healthcare professionals and supporters all working within the bleeding disorders field.

When you join as a member you’ll be able to take part in a wide range of members events, meet other people with bleeding disorders and their carers, and most importantly have a community who knows exactly what you’re going through.

Ind Giving Photo

HOW DO WE DO THIS?

We run various events through the year, all of which are free to members such as:

  • Educational workshops
  • Information campaigns such as our Talking Red campaign
  • Fundraising challenge events which are another great way to meet members while raising a few quid!
  • Our annual AGM
  • Youth weekends and sports days for young people

My son and I went to a newly diagnosed event with a little trepidation but I needn’t have worried – everyone was so lovely and it’s so great to know I am not alone

HOW YOU CAN HELP

If you’re a member you can sign up and get involved. Why not come along to

  • A newly diagnosed event (if your child is recently diagnosed)
  • Set up a support group in your area
  • Talk to your local media about haemophilia with our helpful media kit
  • Arrange your own fundraising event – and let us know, we can profile it on the site!

TELL US WHAT YOU WOULD LIKE TO GET OUT OF THE HAEMOPHILIA SOCIETY COMMUNITY

Have you got ideas for fundraisers or for a social media campaign? We would love to support you since together we can amplify the message and ensure people are better informed about bleeding disorders.