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POLICY

Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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World Haemophilia Day - April 17

World Haemophilia Day 2018

Welcome to World Haemophilia Day Today is World Haemophilia Day. It is a day where we hold events to promote understanding and awareness of bleeding disorders. We do this while raising much needed funds for The Haemophilia Society to support our campaigning, events and services. This year’s theme This year,

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Update on the Contaminated Blood Inquiry

The Prime Minister has updated Parliament on the steps towards the creation of the statutory public inquiry into contaminated blood and blood products. We welcome the progress that has been made and the commitment to consult widely and in detail on the terms of reference. Today’s announcement confirms that the inquiry

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Meeting with the Cabinet Office regarding the Contaminated Blood Public Inquiry

Last week Liz Carroll, Chief Executive of the Haemophilia Society, alongside other campaigning groups, Haemophilia Wales and Haemophilia Scotland, met with Damian Green, the First Secretary of State, and the Cabinet Office team to discuss the next steps in taking the contaminated blood inquiry forward. Firstly, those present were invited to

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