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PROVIDING SUPPORT AT ALL LIFE STAGES

PROVIDING SUPPORT AT ALL LIFE STAGES

Supporting you and providing opportunities to meet community

As the UK’s only independent charity for everyone affected by a bleeding disorder, we are a growing community of individuals and families, healthcare professionals and supporters all working within the bleeding disorders field.

When you join as a member you’ll be able to take part in a wide range of members events, meet other people with bleeding disorders and their carers, and most importantly have a community who knows exactly what you’re going through.

We provide various resources across what we term the 7 life stages:

  • Help for newly diagnosed families
  • Starting nursery or school
  • Learning to self treat
  • Transition from childrens to adult services and treatment compliance
  • Career choices
  • Considerations in new relationships and family planning
  • Ageing and multi-morbidities with bleeding disorders

HOW DO WE DO THIS?

We run various events through the year, all of which are free to members such as:

  • Educational workshops
  • Information campaigns such as our Talking Red campaign
  • Fundraising challenge events which are another great way to meet members while raising a few quid!
  • Our annual AGM
  • Youth weekends and sports days for young people

WHO ARE OUR SERVICES FOR?

We will develop and deliver services to provide information, support and reduce isolation for those who are:

  • Wanting to stay fit, healthy and active, whatever their age and level of ability
  • Particularly isolated due to their cultural or family circumstances
  • Living with or supporting someone with an inhibitor
  • Affected by contaminated blood
  • Carriers
  • Carers

HOW YOU CAN HELP

Have you got ideas for fundraisers or for a social media campaign? We would love to support you since together we can amplify the message and ensure people are better informed about bleeding disorders.

If you’re a member you can sign up and get involved. Why not:

  • Keep an eye on our events calendar and come along to our programme of events and workshops
  • Set up a support group in your area
  • Arrange your own fundraising event – and let us know, so we can help promote it!
  • Share your story with us

TELL US WHAT YOU WOULD LIKE TO GET OUT OF THE HAEMOPHILIA SOCIETY COMMUNITY

Have you got ideas for fundraisers or for a social media campaign? We would love to support you since together we can amplify the message and ensure people are better informed about bleeding disorders.
SHARING IS CARING