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KEEP YOU INFORMED

KEEP YOU INFORMED

KEEPING YOU UP TO DATE WITH THE BEST IN TREATMENT AND CARE SO YOU CAN LIVE WELL WITH A BLEEDING DISORDER

If your child is newly diagnosed, it can be a concerning time. We help you find access to care and we provide advice on our website through every stage of life. And if you can’t find what you need, you can get in touch. We are at the end of the phone and happy to help in any way we can even if that means directing you to someone better qualified to answer!
care centre

HOW DO WE DO THIS

We provide various resources across what we term the 7 life stages

  • Help for newly diagnosed families
  • Starting nursery or school
  • Learning to self treat.
  • Transition from childrens to adult services and treatment compliance.
  • Career choices.
  • Considerations in new relationships and family planning.
  • Ageing and multi-morbidities with bleeding disorders.

Finding out my son had haemophilia was a trying time and a I felt worried for the future. But I really feel as a member like I am in safe hands. 

WHO ARE OUR SERVICES FOR?

We will develop and deliver services to provide information, support and reduce isolation for those who are:

  • Wanting to stay fit, healthy and active, whatever their age and level of ability.
  • Particularly isolated due to their cultural or family circumstances.
  • Living with or supporting someone with an inhibitor.
  • Affected by contaminated blood.
  • Carriers.
  • Carers.

REACHING OUT INTO THE LOCAL COMMUNITY

We will build our relationships with members via our local groups and new youth ambassador
programme, enabling members to articulate their voice more effectively and establish an
inclusive and mutually supportive community. This includes recruiting and training community
advocates, campaigners and fundraisers.
SHARING IS CARING