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Paid Haemophilia Research with Exafield

We have been asked by a company called Exafield who are conducting anonymous confidential medical market research to let you know about a research project they are doing. They would love your opinions on their research. We are offering £60 for a 60 minute telephone discussion, if you meet the

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Obtaining Medical Records – Update

Introduction Many members have asked us what they need to do if they want to be involved in the contaminated blood and blood products inquiry and what to do with any evidence they may hold, such as records. We have put together below some advice on what to do with

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VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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Joining with The Society and Malcomson Law

Malcomson Law has unrivalled experience in the bleeding disorders litigation area having represented people with bleeding disorders at other public inquiries, compensation tribunal scheme applications and representing the interests of people with bleeding disorders at government level in several countries.  The Haemophilia Society has, therefore, appointed Malcomson Law to be

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