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Obtaining Medical Records

The Society has received a number of questions from people asking about access to and obtaining copies of their medical records in relation to the Public Inquiry into the Contaminated Blood Scandal. Everyone is entitled to copies of their medical records, although it is a matter for the NHS Trust

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VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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Joining with The Society and Malcomson Law

Malcomson Law has unrivalled experience in the bleeding disorders litigation area having represented people with bleeding disorders at other public inquiries, compensation tribunal scheme applications and representing the interests of people with bleeding disorders at government level in several countries.  The Haemophilia Society has, therefore, appointed Malcomson Law to be

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Public Inquiry Update

Eleven months after the Government announcement of the Statutory Public Inquiry into the Contaminated Blood Scandal, The Haemophilia Society has, today, reaffirmed its demand that, at the minimum, the Terms of Reference and a timetable for the inquiry must be published before the first anniversary of the announcement on July

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