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All Posts by Jess Milton

VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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Public Inquiry Update

Eleven months after the Government announcement of the Statutory Public Inquiry into the Contaminated Blood Scandal, The Haemophilia Society has, today, reaffirmed its demand that, at the minimum, the Terms of Reference and a timetable for the inquiry must be published before the first anniversary of the announcement on July

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Take part in our inhibitor survey

We’re conducting a survey among people aged 16+ with a bleeding disorder who have an inhibitor and their family members. An inhibitor is a type of antibody that prevents factor replacement treatment from working. When an inhibitor develops, it binds to factor concentrates such as factor VIII or factor IX,

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