CALL US NOW 0207 939 0780
PLEASE DONATE

APPG on Haemophilia and Contaminated Blood – Latest Meeting

The APPG on Haemophilia and Contaminated Blood met on the 29th March.

The Agenda for the Meeting was:

  1. Introductions and Apologies
  1. New Contaminated Blood Support consultation
    1. Aspects of the new proposals
    2. The new scheme administrator
    3. Plans for engagement
    4. Proposed meeting with Lord O’Shaughnessy
  1. Update on actions from the last meeting
    1. Expanded membership of the APPG
    2. Hillsborough-style inquiry and letter to Bishop James Jones.
    3. Submission to the Health, Disability and Work Green Paper
    4. Update on correspondence with Alliance House and scheme administrator trustees
  1. Dates of the next meetings
  1. AOB

The actions agreed at the meeting were:

  • To include a discussion of the remit and focus of the APPG at the next AGM
  • To write to the Minister regarding the proposed meeting and the support scheme (available here)
  • Invite members and affected individuals to put themselves forward for the proposed User Panel and Working Group on benefits and contaminated blood
  • To schedule a meeting with the Chairs of the discretionary Alliance House charities

Future meetings are planned for Tuesday 18th April, Wednesday 21st June and provisionally Wednesday 11th October. Additional meetings may be scheduled as required.

The minutes of the meetings are available here: APPG meeting minutes 29 March 2017 final.

Attendees are the meeting also referred to the Haemophilia Society’s Statement on Contaminated Blood and a letter from Alistair Burt to the DH.

 

 

Jefferson Courtney

VIEW ALL POSTS

1 comment

  1. Martin 3 months ago 5th April 2017

    A representative from my MP s Office ask questions of the new proposals of course as always the answers were very vague if at all. The proposals that were made in 2016 were to what the government said “the needs of the victims infected” , i’m not sure how my needs have changed because people have been infected worse than what the government first thought.
    Surely the pot needs to be bigger and maybe a consideration that funds are taken from a disaster fund rather than the NHS. It is after all the greatest disaster in NHS history !!

    REPLY

Leave a reply

Your email address will not be published. Required fields are marked *