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The Haemophilia Society is the only UK wide charity for all those affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.
What we do
  • KEEP YOU INFORMED

    If your child is newly diagnosed, it can be a concerning time. We help you find access to care and we provide advice on our website through every stage of life. And if you can’t find what you need, you can get in touch. We are at the end of the phone and happy to help in any way we can even if that means directing you to someone better qualified to answer!
    Find out about membership

  • PROVIDE SUPPORT & COMMUNITY

    As the UK’s only independent charity for everyone affected by a bleeding disorder, we are a growing community of individuals and families, healthcare professionals and supporters all working within the bleeding disorders field. Joining, you'll meet other people with bleeding disorders & most importantly meet a community who knows exactly what you’re going through. Get information & support

  • INFLUENCE & ADVOCACY

    We make it our mission to ensure that access to care for people with bleeding disorder is on par with those with infectious diseases.


    For those affected by the Contaminated Blood scandal, our work with the All Party Parliamentary Group pushes for better support packages for all those affected.


    Read recent news here

What do you need help with today?

ABOUT BLEEDING DISORDERS

UNDERSTANDING HAEMOPHILIA &

OTHER INHERITED BLEEDING DISORDERS

In people with bleeding disorders, there is a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include:

Hameophilia A | Haemophilia B | von Willebrands

EVENTS AT THE HAEMOPHILIA SOCIETY

UPCOMING & RECENT EVENTS AT THE HAEMOPHILIA SOCIETY
UPCOMING EVENT
29th March 2017 at 5:15 pm

Meeting of the APPG on Haemophilia and Contaminated Blood

The agenda is: Introductions and Apologies New Contaminated Blood Support consultation Aspects of the new proposals The new scheme administrator Plans for engagement Proposed meeting with Lord O’Shaughnessy Update on

9th April 2017 Brighton, U.K.

BRIGHTON MARATHON 2017

17th April 2017 GLOBAL

World Haemophilia Day

23rd April 2017 London

London Marathon

YOUR STORIES

READ REAL-LIFE STORIES FROM OUR MEMBERS

Should people with haemophilia do dangerous sports? In my view, yes, if you can. You take all the safety precautions on offer, you assess the risks and plan for them, and then you go and just do it!

Alan

Rally driving enthusiast

I had done it; my race was now over. I had mixed emotions on arrival at Airlie Beach. I knew I was going to miss my crew; they really are a great bunch and you really do bond with people!

Ben

Clipper round-the-world Racer

I never thought in my wildest dreams that I could fly a plane, but my confidence has grown and I no longer doubt myself.

Paul

Flying scholar

COMMUNITY

BECOME A MEMBER

Become a member of The Haemophilia Society free today.

Fill in a simple form and we will send out a membership pack to you.

TAKE ACTION

CAMPAIGN WITH US

Push for fairness for people with bleeding disorders affected by contaminated blood.

Join us in demanding just support packages.

FUNDRAISE

CHALLENGE YOURSELF

Our members and supporters do amazing things to raise funds for us.

Challenge yourself or team up with friends to raise money.

CONNECT

GET IN TOUCH WITH US

We can be found on all the usual online channels – Twitter, Facebook, e-mail.

But if that’s all a bit too high-tech, we’re also on the end of the phone.

OUR NEWS

LATEST NEWS AT THE HAEMOPHILIA SOCIETY